Toward Better Collaboration in the Education of Students with Fetal Alcohol Spectrum Disorders: Integrating the Voices of Teachers, Administrators, Caregivers, and Allied Professionals
https://doi.org/10.4471/qre.2013.15
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Abstract
This exploratory study addresses the call for an increased presence of key stakeholders’perspectives in educational research involving students with Fetal Alcohol Spectrum Disorders (FASDs) (Duquette, Stodel, Fullarton, & Hagglund, 2006a). Specifically, greater understandings are necessary to support the educational success of students with FASDs. The analysis of 11 focus groups and 3 interviews with teachers, administrators, caregivers, and allied professionals (total n = 60) revealed three themes: fostering relationships, reframing practices, and accessing supports. These findings have important implications for the use of a qualitaitve approach in generating evidenced-based educational practices for stakeholders reflective of enhanced communication and collaboration that better meet the needs of students with FASDs.
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References
Blackburn, C. (2009). FASD Building Bridges with Understanding: the acquisition of
Google Scholar Crossrefpractitioner knowledge in relation to the management of support of children with Foetal
Google Scholar CrossrefAlcohol Syndrome and related disorders. Retrieved from
Google Scholar Crossrefhttp://www.sunfield.org.uk/pdf/FASD_Building_Bridges.pdf.
Google Scholar CrossrefBlackburn, C., Carpenter, B., & Egerton, J. (2010). Shaping the future for children with foetal
Google Scholar Crossrefalcohol spectrum disorders. British Journal of Learning Support, 25(3), 139-145.
Google Scholar CrossrefBlackburn, C., Carpenter, B., & Egerton, J. (2009). Facing the challenge and shaping the future
Google Scholar Crossreffor primary and secondary aged students with Foetal Alcohol Spectrum Disorders (FAS-
Google Scholar CrossrefeD Project). London, England: National Organisation on Fetal Alcohol Syndrome-UK.
Google Scholar CrossrefBrown, J. D. (2004). Family supports for children who have alcohol-related disabilities.
Google Scholar CrossrefDevelopmental Disabilities Bulletin, 32(1), 44-61.
Google Scholar CrossrefBurd, L., Klug, M. G., Martsolf, J. T., & Kerbeshian, J. (2003). Fetal alcohol syndrome:
Google Scholar CrossrefNeuropsychiatric phenomics. Neurtoxicology & Teratology, 25, 697-705.
Google Scholar CrossrefCarpenter, B. (2011). Pedagogically bereft: Improving learning outcomes for children with
Google Scholar CrossrefFoetal Alcohol Spectrum Disorders. British Journal of Special Education, 38(1), 37-43.
Google Scholar CrossrefChudley, A. E., Conry, J., Cook, J. L., Loock, C., Rosales, T., & LeBlanc, N. (2005). Fetal
Google Scholar Crossrefalcohol spectrum disorder: Canadian guidelines for diagnosis. CMAJ, 172, 1-21.
Google Scholar CrossrefConnor, P., & Streissguth, A. (1996). Effects of prenatal exposure to alcohol across the lifespan.
Google Scholar CrossrefAlcohol Health Research, 20, 148-157.
Google Scholar CrossrefCreswell, J. W. (2012). Educational research: Planning, conducting, and evaluating quantitative
Google Scholar Crossrefand qualitative research—Fourth edition. Boston, MA: Pearson.
Google Scholar CrossrefDuquette, C., Stodel, C., Fullarton, S., & Hagglund, K. (2007). Secondary school experiences of
Google Scholar Crossrefindividuals with fetal alcohol spectrum disorder: Perspectives of parents and their
Google Scholar Crossrefchildren. International Journal of Inclusive Education, 11(5-6), 571-591.
Google Scholar Crossref.Duquette, C., Stodel, E., Fullarton, S., & Hagglund, K. (2006a). Persistence in high school:
Google Scholar CrossrefExperiences of adolescents and young adults with Fetal Alcohol Spectrum Disorder.
Google Scholar CrossrefJournal of Intellectual & Developmental Disability, 31(4), 219-231.
Google Scholar CrossrefDuquette, C., Stodel, E., Fullarton, S., & Hagglund, K. (2006b). Teaching students with
Google Scholar Crossrefdevelopmental disabilities: Tips from teens and young adults with fetal alcohol spectrum
Google Scholar Crossrefdisorder. Teaching Exceptional Children, 39(2), 28-31.
Google Scholar CrossrefDybdahl, C. S., & Ryan, S. (2009). Inclusion for students with fetal alcohol syndrome:
Google Scholar CrossrefClassroom teachers talk about practice. Preventing School Failure, 53(3), 185-195.
Google Scholar CrossrefGreen, J. H. (2007). Fetal alcohol spectrum disorder: Understanding the effects of prenatal
Google Scholar Crossrefalcohol exposure and supporting students. Journal of School Health, 77(3), 103-108.
Google Scholar CrossrefHealth Canada. (2006). It’s your health: Fetal alcohol spectrum disorder. Retrieved March 15,
Google Scholar Crossreffrom http://www.hc-sc.gc.ca/hl-vs/iyh-vsv/diseases-maladies/fasd-etcaf-eng.php
Google Scholar CrossrefKelly, S. J., Day, N., & Streissguth, A. P. (2000). Effects of prenatal alcohol exposure on social
Google Scholar Crossrefbehaviour in humans and other species. Neurotoxicology and Teratology, 22, 143-149.
Google Scholar CrossrefLincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Beverly Hills, CA: Sage Publications.
Google Scholar CrossrefMcCarty, C., Waterman, J., Burge, D., & Edelstein, S. B. (1999). Experiences, concerns, and
Google Scholar Crossrefservice needs of families adopting children with prenatal substance exposure: Summary
Google Scholar Crossrefand recommendations. Child Welfare, 78(5), 561-577.
Google Scholar CrossrefMellard, D., & Lancaster, P. (2003). Incorporating adult community services in students’
Google Scholar Crossreftransition planning. Remedial and Special Education, 24(6), 359-368.
Google Scholar CrossrefMerriam, S. B. (2009). Qualitative research: A guide to design and implementation. San
Google Scholar CrossrefFrancisco, CA. Jossey-Bass.
Google Scholar CrossrefNational Organization on Fetal Alcohol Syndrome—South Dakota (NOFAS-SD). (2009). Fetal
Google Scholar CrossrefAlcohol Spectrum Disorders education strategies in the education system. Sioux Falls,
Google Scholar CrossrefSD: Center for Disabilities, Sanford School of Medicine, University of South Dakota.
Google Scholar CrossrefPatton. M. Q. (2002). Qualitative research and evaluation methods (3d ed.). Thousand Oaks,
Google Scholar CrossrefCA: Sage Publications.
Google Scholar CrossrefPei, J., Job, J., Poth, C., O’Brien-Langer, A., & Tang, W. (2012). Teaching students with Fetal
Google Scholar CrossrefAlcohol Spectrum Disorders: Knowledge and beliefs of pre-service teachers. Unpublished manuscript.
Google Scholar CrossrefPei, J. Denys, K., Hughes, J., Rasmussen, C. (2011). Mental health issues in fetal alcohol
Google Scholar Crossrefspectrum disorder. Journal of Mental Health, 20(5), 438-448.
Google Scholar CrossrefPurdey, C. D. (2006). Children diagnosed with fetal alcohol spectrum disorder: A student-based
Google Scholar Crossrefneeds assessment. Retrieved from
Google Scholar Crossrefhttp://library.athabascau.ca/drr/download.php?filename=caap-
Google Scholar Crossrefloi/Charleen%20Purdey%20Letter.pdf.pdf
Google Scholar CrossrefRasmussen, C. (2005). Executive functioning and working memory in Fetal Alcohol Spectrum
Google Scholar CrossrefDisorder. Alcoholism: Clinical and Experimental Research, 29, 1359-1367.
Google Scholar CrossrefRasmussen, C., Andrew, G., Zwaigenbaum, L., & Tough, S. 2008. Neurobehavioural outcomes
Google Scholar Crossrefof children with fetal alcohol spectrum disorders: A Canadian perspective. Pediatric
Google Scholar CrossrefChild Health, 13(3), 185-191.
Google Scholar CrossrefRyan, S., & Ferguson, D. L. (2006a). On, yet under, the radar: Students with fetal alcohol
Google Scholar Crossrefsyndrome disorder. Exceptional Children, 72(3), 363-365.
Google Scholar CrossrefRyan, S., & Ferguson, D. L. (2006b). The person behind the face of fetal alcohol spectrum
Google Scholar Crossrefdisorder: Student experiences and family and professionals’ perspectives on FASD. Rural
Google Scholar CrossrefSpecial Education Quarterly, 25(1), 32-40.
Google Scholar CrossrefStreissguth, A. (1997). Fetal Alcohol Syndrome: A guide for families and communities.
Google Scholar CrossrefBaltimore, MD: Paul H. Brooks.
Google Scholar CrossrefStreissguth, A. P., Aase, J., Clarren, S., Randels, S., LaDue, R., & Smith, D. (1991). Fetal
Google Scholar Crossrefalcohol syndrome in adolescents and adults. Journal of the American Medical
Google Scholar CrossrefAssociation, 265(15), 1961-1967.
Google Scholar CrossrefStreissguth, A. P., Sampson, P. D., Olson, H. C., Bookstein, F. L., Barr, H. M., Scott, M.,
Google Scholar CrossrefFeldman, J., & Mirsky, A. F. (1994). Maternal drinking during pregnancy: Attention and
Google Scholar Crossrefshort-term memory in 14-year-old offspring—A longitudinal prospective study.
Google Scholar CrossrefAlcoholism: Clinical & Experimental Research, 18, 202-218.
Google Scholar CrossrefTimler, G. R., & Olswang, L. B. (2001). Variable structure/variable performance: Parent and
Google Scholar Crossrefteacher perspectives on a school-age child with Journal of Positive Behavioral
Google Scholar CrossrefInterventions, 3(1), 48-56.
Google Scholar CrossrefWilliams, R. J. (1999). The role of psychological tests in FAS/E. In J. Turpin & G. Schmidt
Google Scholar Crossref(Eds.), Fetal Alcohol Syndrome/Effect: Developing a community response (pp. 44-55).
Google Scholar CrossrefHalifax, NS: Fernwood.
Google Scholar CrossrefDownloads
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